PART EIGHT
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One
of the first steps in dealing with a problem behaviour is to
ACKNOWLEDGE that it IS a problem. There is a certain relief and
empowerment when a problem is acknowledged. Then when the next step
is ready to be taken, whatever it is, the person may be more
confident having a go at a therapy or facing a challenge if they know
their problem is REAL and believed by others. Imagine a child who
struggles with handwriting. When it is revealed they have dysgraphia
or dyslexia everyone has permission to go “Ok, that’s the story,
let’s go from here now.” That same person, undiagnosed may grow
more and more unhappy, confused and in a state of mental bashing
themselves up every day knowing that nobody understands or believes
the issue. They may receive completely unhelpful, and vague advice
like “you’ll just have to try harder” or “perhaps glasses
would help”, “stop worrying” “ah well, we all feel like
that”. Reminds me of something that used to urk but also amuse
my Dad - those people who say “How are you, good, good” and they
don’t care at all. Just like the verse in the Bible that says “And
one of you say unto them, Depart in peace, be ye warmed and filled,
notwithstanding ye give them not those things which are needful to
the body, what doth it profit? Our buzz word over the last few
years has been STRATEGIES. We’ve got to work out what an issue is,
and then think of a good strategy to help, and then the hard part
ACTUALLY DOING THAT STRATEGY when the challenge comes along.
Unfortunately
some people may think “If I accept this behaviour then I am
enabling that person to wallow in their challenges, I’ll allow them
to feel hopeless, I’ll give them excuses for not trying ...” On
the whole this is pretty dangerous and destructive thinking.
I
read recently of a young man named Ryan who said the following:
“Now
that I know I’m an Aspie, I focus on the “how” instead of the
“why”. For example, if I was in a class with a lot of other
people and everyone was “getting it” I used to think, “Why am I
not getting it”. Now I think, “How is the best way for me to get
it”. In other words, what strategy can I use to catch on? For me,
the focus on the “how” instead of the “why” is much less
emotional and much more rational. Instead of blaming myself for
something I didn’t understand, I am now strategically coping with
the neurotypical world.
I
was a participant in one of Celeste Littek’s autism seminars and
she taught me that strategies and resources for a disability or
challenge are a wonderful way to enable people to cope. One mistake
is that people will think “I’ll give you this resource to help
now, but I think we aught to phase it out in time.” Would we
build ramps for wheelchair access but then take them down little by
little so we could “phase out” the wheelchair use? A
neurological difference is always going to be a neurological
difference. We might find strategies that help, and we may overcome
some challenges to a degree, but quirkiness can’t be CURED, it will
always be there. The degree to which the quirky person and those
around them will rejoice in those quirks or suffer with them is very
dependent on tiny little choices made daily in how to deal with
situations.
I
guess the over-riding feeling for the quirky people I’ve heard from
is CONFUSION about the rules of society. The unwritten rules that
they are just supposed to know, understand, remember and follow. And
if a quirky person experiences problems with remembering and
following these rules then quite a few regular members of society can
be intolerant and hurtful. If you are not quirky – if you are
“regular” please try to be considerate of quirky people.
A
quirky child at school has so many other things pressing upon them,
and I guess the most obvious and sickening challenge will be
bullying, that figuring out how to cope with their quirks comes way
down the list. And parents don’t necessarily have enough time with
the children, or perhaps even realise the magnitude of the
challenges, to work on them one at a time
I’m
just thinking here of one of our children – a real sweetie pie,
very tolerant, loving, forgiving, imaginative and artistic. He has
tremendous difficulty concentrating sometimes and needs just a little
more time to process things. If I constantly thought he was just
being lazy or not trying I would be at my wits end. If he was
trying to keep up with peers, or the hubbub of school activities, or
dodge bullies … well, I don’t want to think about that.
Everybody
who works with quirky children will tell you that you have to become
a detective to figure out what is going on with your child. However,
there is a saying: “The hallmark of a neurological disorder is it's
inconsistency” A child who can’t tolerate noise and movement in
one situation might cope very well in another situation when perhaps
they are more comfortable, not hungry, just had a sleep, just had
some happy exercise, the noise was not unexpected – or when they
are making the noise themselves.
So
- to be a detective we need to look very closely at our children and
their behaviour, in many different situations, and even set up
certain situations to see how they cope and where their triggers are.
Have
you ever packed a neglected toy away into a box and put it on a high
shelf, thinking that nobody was playing with it, then later have
someone in tears because their favourite toy was missing? You might
say “You never played with it!”
They
might say “I did – you just never saw me!” You realise just
because you never saw
a big demonstration of their appreciation for something then you
didn’t think they HAD any appreciation for it. Some children fly
so low under the radar that it’s very hard to pick things up!
Some
children, kindly, exhibit their challenges in a way that is easier to
spot – hand flapping or jumping, rocking or staring. But not all
self stimulating or calming behaviour is easy figure out –
whistling, humming, shouting, hitting and other “annoying”
behaviours can be a child’s way of expressing a challenge they’re
coping with. It can be difficult to separate this from plain old
annoying, antagonising behaviour (which in itself, with any child is
a sign that something else is going on, but it can be easier to
unpick that behaviour in a regular child).
Dr
Temple Grandin has said “Obviously if (a child) has got sound
sensitivity, he’s going to cover his ears. (with visual processing
problems) They do a lot of flicking around with the eyes. That’s a
tip-off. They’ll tend to tilt their head because they can see
better if they look out of the corner of their eye. Oftentimes,
they’ll hate escalators because they can’t tell when to get on
and off the escalators. They may have problems catching a ball.
When you go in and do eye exams they’re going to be normal. Their
problem is INSIDE THE BRAIN. Don’t get hung up on diagnostic
categories.
I
admire and respect what Temple Grandin has to say, and recommend her
work to anyone interested in learning more about autistic challenges.
So,
yes, it can take a very close examination of a child's life to
really define where quirky problems stem from. With natural home
education you have oodles and oddles of hours to learn about your
child, making a mental or an actual file of challenges they have. If
you physically write them down it can be a great encouragement to you
and your child to see any progress they are making, no matter how
slow. Our older two boys have made terrific progress in the last two
or three years. We say to each other “Leaps and bounds!” when
they achieve something – at first it was our oldest getting the bus
by himself, but since then there have been pretty major achievements
like drivers licences and David buying a motorbike and taking trips
to Blenheim and other places. Just the other day our oldest bowled
me over once again when he told me about a conversation he’d had
with his support worker. He had shown so much discernment when he
very rightly and tactfully disagreed with her that he made me burst
with pride.
Some
people believe that quirky children should be alongside neurotypical
peers – integrated into regular schooling, given the same
opportunities. If you are of this belief then it is best to find
someone to come alongside you and support you with that. I don’t
have any personal experience with that, and to be honest I can’t
see it being entirely the best idea.
I
don’t really have to apologise for being outspoken on this issue –
when I thought about it you probably wouldn’t want to attend a talk
about natural education if someone was half-hearted about it, saying
that home education and school were both really great options, and it
kind of didn’t matter at all which you went with.
But
Yes, I am very passionate about home education, especially natural
learning – especially for quirky children who more often than not
in a regular school situation are puzzled or bored, drained of
energy, and not allowed the time and freedom to become as wonderful
as they could be – having to deal with curriculum, social rules,
noise, confusion and constant restriction on how much noise or
movement they need to make.
The
alternative to regular (or public) schooling might be a private
school. However, there are similar problems there too – this article is something I
REALLY recommend you reading.
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